Category: Disability

  • Friendships and Disability

    Friendships and Disability

    Have some (or most) of your friends disappeared since the birth of your special needs child or the onset of your chronic illness? Don’t be discouraged..this has happened to many of us. At first it hurts but in time I’ve come to see it as a kind of sifting. I lost friends when I first got sober […]

  • Down Syndrome and CHD – Our Story

    Down Syndrome and CHD – Our Story

    Around August of 2000, I found out I was pregnant. I wasn’t happy or excited about it. The birth of my daughter in 1999 was complicated by a diagnosis of vasa previa, a life-threatening situation for myself and her. She was delivered at 36 weeks after I spent the last trimester on bed rest. She […]

  • Talk About Depression, Recovery, Homeschooling and Chronic Illness

    Talk About Depression, Recovery, Homeschooling and Chronic Illness

    As a person who has struggled with addictions and depression throughout my life, I took the news of Robin Williams’ passing hard. Like the passing of Philip Seymour Hoffman earlier this year, it just hit close to home. It reminded me that 28 years of sobriety is no guarantee. It’s still one day at a […]

  • 7 Tips for Holidays with Depression and Disability

    7 Tips for Holidays with Depression and Disability

    Depression is a sad reality to many during the holidays. Dealing with disability in ourselves or a loved one can intensify it. Some are grieving the loss of a loved one. Money struggles, strained family relationships, and social pressures can make the holidays difficult for anyone. My Story Depression has been an unwelcome presence in […]

  • When People Stare (For Parents of Kids with Down Syndrome)

    When People Stare (For Parents of Kids with Down Syndrome)

    It was a difficult time when I gave birth to my son in 2001 with a somewhat unexpected diagnosis of Down Syndrome. It was suspected but not confirmed, just a couple of soft markers. Without doing an amnio, there was no way to know for sure until he was born. The first thing I noticed was […]

  • Dear Sean Hannity: Down Syndrome is Not A Punchline

    Dear Sean Hannity: Down Syndrome is Not A Punchline

    This morning I had the very dubious pleasure of watching the appearance of Gavin McInnes on The Sean Hannity show when it appeared on my Facebook stream courtesy of the National Down Syndrome Congress. As a mom of a soon-to-be 13-year-old young man with Down Syndrome, I was saddened and sickened by the comments made […]

  • My Dystonia Story

    My Dystonia Story

    (This post was originally published last year. I’m reposting it to help promote the #dystoniapetition and #dystoniaawareness social media drives.) Please sign the petition to make September Dystonia Awareness month here. The Onset My symptoms came on fast and furious in August of 2010, just after I had decided to try to bring Nicolas home to homeschool him. My symptoms […]