February 7-14 Congenital Heart Defect Awareness Week

chd

February is a big month for hearts. Besides Valentine’s Day, it’s Heart Awareness month, Congenital Heart Awareness week (February 7-14) and National Organ Donor Day is February 14. 

No parent ever imagined themselves in the Cardiac Critical Care Unit until it happens. No mom ever imagined to get a prescription for Lasix for her baby. No mom wants to watch her baby struggle to take a bottle because of rapid respiration. And certainly no parent ever imagined having to take that very long walk from their babies’ rooms to turn them over for open heart surgery.

Sadly, some CHD angels never made it to surgery.

These things happened to us and our stories don’t end there.  Some of us will have to follow up with cardiologists throughout our child’s life. Future surgeries may be a possibility. And some of us are grieve.

Here are a few stories of CHD heroes.

We believe in miracles – the story of Lauren born with a malformed left ventricle and is doing very well post transplant.

Robby’s Story – Tetralogy of Fallot is four defects within the heart.

A New Heart – Beautiful baby Leah’s story.

From the Heart – In memory of Osias and how you can get involved in CHD

Our Heart Story – The CHD story of Eli and also that of his brother gone home to heaven too early from CHD

The CHD Blog: A Heart Mom’s story

Gwenyth Graham Carpenter – A CHD story

Nicolas’ Story – Our story. Down Syndrome and CHD

Want to help? There are lots of things you can do. Spread CHD awareness on social media channels. Donate blood. Support local 5Ks that raise money for CHD research.

Donate to organizations such as Mended Little Hearts, The Children’s Heart Foundation and Ronald McDonald House (we stayed there during the pacemaker surgery and can’t say enough good things about the hospitality we received.

You can read more stories at The Faces of CHD Pinterest board. 

Congenital heart defects are every country’s #1 birth defect. Nearly one of every 100 babies is born with a CHD. Are you expecting or do you know someone who is? Be sure to ask for a pulse oximetry test if your state does not have legislation requiring the screening.

 

Comments

  1. I had no idea that the percentage was as high as 1% of births. While I never experienced CHD personally, I have had friends who lost children to it. Stopping by from SITS comment love.
    Lynda Lippin recently posted…Pilates Plank on Real Alignment MatMy Profile

  2. I didn’t realize the number of incidences was that high. That’s strikingly high! So glad you’re helping to spread awareness to such an important issue.
    Liz @ A Nut in a Nutshell recently posted…Are You a Spaghetti Breaker-in-Half’er?My Profile

  3. I didn’t know that the percentage was that high either. I good friend of mine from high school has a daughter that was born with CHD, and had a successful surgery that has corrected it. She still goes in and they check her every year, and so far so good. She is a little miracle.

  4. Thanks for sharing this, my daughter has a congenital heart defect.

  5. I read your son’s story, and I must say his smile in the last photo is what I will remember. I have 4 girls and we always were thankful for their health above all. Wishing you all health and happiness! Stopping by from SITS and so glad I did…
    Melissa recently posted…Why doesn’t my Home have more showings?My Profile

  6. Wow thank you for sharing this information. I had no idea! #SITSBlogging
    Lora @ Crazy Running Girl recently posted…The scaleMy Profile

  7. Thank you so much for sharing this post! Raising awareness is so important. I already support Ronald McDonald House, but I will be looking into the other organizations as well.
    Michelle @ Tales of a Fit Kitty Mama recently posted…Why I BlogMy Profile

  8. Thanks so much for including our heart story in your roundup. Happy Heart week!
    Lisa@All That and a Box of Rocks recently posted…Go Red for Heart!My Profile

  9. Thank you for spreading awareness, I had no idea the stats were so high.
    Mercedes {Beyond Beauty Lounge} recently posted…Nutrisystem My Way Plan #NSNation Week 4 UpdateMy Profile

  10. information I didn’t know, thanks.
    annette @ A Net In Time recently posted…Five Minute Friday: GardenMy Profile

  11. Wow, I can’t imagine going through something like this. What a great, informative post. It’s good that you can use your experience to help others.
    Brandy recently posted…Booklovers Anonymous: Jennifer Jones Won’t Leave Me Alone!My Profile

  12. Thank you for sharing this. I have a friend whose son was born with a heart defect, but I didn’t know the prevalence was this high.
    Leah Courtney recently posted…No More Perfect Kids Book Study: Chapter 5 and 6- When Kids Ask Who Am I and Is It Okay That I’m UniqueMy Profile

  13. No mother should ever have to see their child hurting. My nephew was born with half heart syndrome — he turned 17 this year. It is amazing what miracles doctors can help perform!

  14. I have a long background as a cardiology nurse, but most of my experience is with adults with coronary disease, not congenital issues. This post was a great place to get started learning — thanks for sharing your experiences … I’m hugging my little ones.

    Great to find you via the BYB Challenge!
    Dianna @ The Kennedy Adventures recently posted…Take Care of Your Mouth with LISTERINEMy Profile

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