Friendships and Disability

friendships and disability

Have some (or most) of your friends disappeared since the birth of your special needs child or the onset of your chronic illness?

Don’t be discouraged..this has happened to many of us. At first it hurts but in time I’ve come to see it as a kind of sifting. I lost friends when I first got sober too. It was time for new people in my life. I’ve continued to change since I had my son and I need to have different people around me now. I don’t care so much for appearances and coolness like I did when I was younger.

What matters most to me now is being authentic. And about how you engage with my son with Down Syndrome. He’s taught me to appreciate the simple things in life. He kind of filters people out for me. If you’re down with him, you’re down with me. And if you act like he doesn’t matter, we’ll just pass each other by.

It’s important to keep reaching out and not let hurts from the past keep us from trying again. Find other moms of special needs children and connect however you can. If it’s hard for you to get out and the best you can manage to connect on some days is social media, that’s okay. It still matters. We’re all in this together and we need each other.

Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. But someone who falls alone is in real trouble. Likewise, two people lying close together can keep each other warm. But how can one be warm alone? A person standing alone can be attacked and defeated, but two can stand back-to-back and conquer. Three are even better, for a triple-braided cord is not easily broken. Ecclesiastes 4:9-12



When Church Is The Hardest Place

disability ministry

We must not quit meeting together, as some are doing. No, we need to keep on encouraging each other. This becomes more and more important as you see the Day getting closer. Hebrews 10:25 ERV When my son was little, he was just one of the … [Continue reading]

My Favorite Blogs for Encouragement

encouraging blogs

Part of self care is learning to reach out to others. Many of us struggle with isolation. Our schedules are overloaded the daily-ness of caregiving, advocating, medical and therapy appointments leaving very little time for socializing. While nothing … [Continue reading]

Learning to Forgive

learning to forgive

"And forgive us our trespasses, as we forgive them that trespassed against us." - Lord's Prayer from the Book of Common Prayer When we think about self care, forgiveness probably isn't the first thing that comes to mind. Making our spiritual life … [Continue reading]

New Series: 31 Days of Self Care for Special Needs Moms

special needs moms

Where Have I Been? As my regular readers may have noticed, it was a busy summer and I took some time out to think about the direction of this blog. My heart has always been to encourage special needs moms and those impacted by chronic illness or … [Continue reading]

Crazy for Coloring Books

coloring pages

Have you noticed that coloring books are just about everywhere these days? They can be seen at countless retailers such as Barnes & Noble, Target and craft stores. Coloring books and coloring pages are the perfect antidote to our stressful, … [Continue reading]

Thoughts on Going Home Again (Part 2)

New York City

This is a less serious post than my first one, and is just my random observations and pics of my trip to NYC in June. 1. When I was diagnosed with dystonia in 2010 I really thought I'd never be able to do something like this again. I didn't think … [Continue reading]

Thoughts On Going Home Again (Part 1)

Bayside Queens

And a new day will dawn for those who stand long And the forest will echo with laughter Led Zeppelin/Stairway to Heaven The last week of June I took a road trip home to NYC with friends who I had not seen in something like 20 -30 years. We grew … [Continue reading]

National Animal Disaster Preparedness Day

pet disaster preparedness

“The best thing a family can do in the case of an emergency is be prepared, and that includes having a plan in place for your pets. We hope that families take into account some simple steps that will help them feel ready to respond should disaster … [Continue reading]